RND; Reflex Neurovascular Dystrophy

I was diagnosed last month with a condition called RND. It has a lot of other names and many different forms. One of the other names I am familiar with is Pain Amplification Syndrome. When I’m talking to people I usually use both. Mostly because when I say Pain Amplification Syndrome, I feel like I just made up a name for my condition! PAS doesn’t sound very . . . real. I’ll be taking something of a break from blogging while I’m getting better. Although I may update here and there.

What is RND?

Pain is usually a response to tissue damage. This damage uses the pain nerve to send a signal to ones spinal cord, which in turn sends a signal to your brain which recognizes the signal of pain.

With my condition there is a short circuit in my spinal cord. The pain signal is not only sent to my brain, it’s also sent to some other nerves, the neurovascular ones to be exact. Those bad boys control blood flow but they’re a bit wimpy when it comes to these signals. They get all scared and decide to make the blood vessels to constrict. Think of it as a chain of bullying. Now, constricted blood vessels equals decreased blood flow. This means less oxygen everywhere and it leads to a build up of acids, both of these things cause more pain. At which point the whole process starts all over again.

I got the information I used to write this little blurb from this very helpful handout. It has a nice diagram too!
http://www.rsds.org/4/youth/pdf/AMP_RNDparentHandout.pdf

Comments

  1. mtgoats says:

    Hi! Sorry to hear about your pain… are you going to do the intensive program in Seattle or Philly? My daughter just started a “home program” on Jan 7… she is not feeling any better. Are you having any success? I am looking everywhere for hope! Hope you are finding relief

  2. I am going to the intensive program some time soon! It’s a very daunting prospect. I’m going to the one in Pitsburgh, actually. That’s the other one that Dr. David Sherry helped build.

    I wish there was a clinic in my country. (Well, one that has more than one bed!) I know it’s really tough and thank you for your kind words, it means a lot. I hope your daughter is also either feeling better or quickly one her way too. I’m having a lot of success with hydrotherapy. If you’re doing an at home program then I suggest you look into it. I feel so free to move in the water, it still hurts but if you find yourself a nice heated pool, it really takes the edge off. Have you gotten Dr. Sherry’s video on RND? It aided me greatly in understanding my condition and it’s treatment.

    Again, I hope your daughter is doing well,
    Magda

  3. crunchberry says:

    Hi Magda;
    Best of luck over in Pittsburgh. My 12 yr old son was diagnosed with RND back in November. He has had it for 18 months now and we are doing outpatient therapy based upon Dr. Sherrys approach. It is def. working! He is back playing sports, active in gym and our goal is for him to be totally pain free but its goign to take a while. Meanwhile – he is back being a normal kid again. It is very hard work but if you want to get better – you will.

    BEST OF LUCK!

  4. Thats wonderful that he is doing well. Its lovely to hear about success stories! I hope he gets pain free as soon as possible. It is indeed very hard work, it takes a lot to overcome RND. Thank you for your kind words.

Trackbacks

  1. […] the reason I’m here; reflex neurovascular dystrophy. I start my therapy for it tomorrow. If you’d like to know more about RND, refer to my older post! Time to go to bed, the long drive wore me […]

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